Credit: RememberMeFTD
Last week, the podcast “Remember Me” posted a video on the topic of grief and frontotemporal degeneration (FTD). The hosts and guests discuss the grief of diagnosis, of caregiving, and of the journey. The hosts are former FTD caregivers Rachael Martinez and Maria Kent Beers, who began “Remember Me.”
The Association for Frontotemporal Degeneration (AFTD) had a webinar last week for healthcare professionals that addressed how primary progressive aphasia (PPA) is diagnosed. The AFTD says, “This webinar is intended for clinicians to support early detection and accurate diagnosis of PPA.” Topics included symptoms of PPA, inclusion and exclusion criteria for making a PPA diagnosis, and common presentations for PPA subtypes.
Brain Support Network has helped over 1400 families with brain donation. Many times, the neuropathology report shows that the donor had a pathology called LATE, which stands for limbic predominant age-related TAR DNA-binding protein 43. LATE pathology often co-occurs with other pathologies. Recently, the journal “Neurology” published some research about LATE, based on brain autopsies.
source: remembermeftd
Friend of Brain Support Network Rachael, who co-founded the “Remember Me” FTD blog and podcast, wrote about her decision to donate her father’s brain and working with Brain Support Network to accomplish that.
“Brain Donations: Who, What, Where, When, and Why?” Webinar
Friday, March 17, 2023
Co-hosts: The Association for Frontotemporal Degeneration (AFTD) and the FTD Disorders Registry
