Washington Post: What it’s like to take a sick parent on an Umrah pilgrimage to Mecca

A Mulsim Woman and Mother at Mecca

Credit: Valentin Tkach for The Washington Post

This is a beautiful story of love, faith, and family by a daughter from southern California who took her mother to Mecca to complete an Umrah pilgrimage (a condensed version of Hajj).

Her mother was diagnosed in 2021 with progressive supranuclear palsy (PSP) after three years of unexplained falls, minor car accidents, dropping things, asking nonsensical questions, and speaking like a drunk.

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UCSF Sleep Researcher Speaks to Local PSP Support Group

Christine Walsh, PhD

Christine Walsh, PhD

UCSF’s Christine Walsh, PhD, joined the Brain Support Network local PSP support group on Sunday, March 9, 2025, where she talked about sleep issues in progressive supranuclear palsy (PSP).  Dr. Walsh wants to improve the quality-of-life for those with PSP and their care partners, as well as identify a sleep-based biomarker for PSP.
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Plática con los Expertos: Entendiendo PSP y SCB: Retos y Oportunidades Terapéuticas

En esta webinario, comenzaré con algunas observaciones sobre la historia de la parálisis supranuclear progresiva (PSP) y el síndrome corticobasal (SCB). Luego, explicaré la presentación clínica, la fisiopatología (cómo se produce la enfermedad) y las claves para el diagnóstico de estas dos intrigantes enfermedades. Al final de la presentación, hablaré sobre las modalidades de tratamiento actuales y los medicamentos experimentales que se están desarrollando.

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MedPageToday: Linda Ronstadt’s Rare Brain Disorder

Linda Rondstadt

Credit: Michele R. Berman, MD, and Mark S. Boguski, MD, PhD via MedPageToday

This MedPage Today article from January 2020 about Linda Rondstadt’s diagnosis of progressive supranuclear palsy (PSP), has a good list of the four main type of PSP.  These include Richardson’s syndrome, PSP-parkinsonism, corticobasal syndrome, and akinesia with gait freezing.

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