PSP/CBD Research Update and Practical Conference
Saturday, October 28, 2017, Crowne Plaza Hotel in Foster City, California
Hosted by Brain Support Network
Organized in partnership with University of California San Francisco Memory & Aging Center
Generously sponsored in part by Biogen and AbbVie
WELCOME
Robin Riddle, CEO | Brain Support Network
Welcome
RESEARCH UPDATE – PART ONE
Alex Klein, PhD | CurePSP
Moderator of the panel
Adam Boxer, MD, PhD | UCSF MAC
Advances in therapeutic development for CBD and PSP
Handout
Slides (sorry, not available from speaker)
Richard Tsai, MD, MBA | UCSF MAC
Tau PET imaging in corticobasal syndrome
Dianna Wheaton, MS, PhD, CHES | FTD Registry
FTD Disorders Registry: A patient and caregiver registry to advance science
Lawrence I. Golbe, MD | Rutgers Robert Wood Johnson
A Cluster of PSP in Northern France: Is this the Key?
Handout
Slides (sorry, not available from speaker)
Daniel C. Lee, PhD | University of South Florida, Tampa
Understanding the role of polyamines during tauopathies
RESEARCH UPDATE – PART TWO
Alex Klein, PhD | CurePSP
Moderator of the panel
Haung (Ho) Yu, PhD | Columbia
Clearing tau from neurons
Stewart Clark, PhD | University of Buffalo
Progress Toward an Animal Model of PSP
Adam Gerstenecker, PhD | University of Alabama at Birmingham
Cognitive, behavioral, and functional aspects of PSP
Gerard Schellenberg, PhD | Penn Neurodegeneration Genomics Center
What we know and don’t know about PSP and CBD genetics
PRACTICAL CONFERENCE – PART ONE
Robin Ketelle, RN | UCSF Memory & Aging Center
Moderator of the panel
Donna Schempp, LCSW | Unaffiliated
Taping into Your Resilience
Leslie Wolf, person with CBD
Holding Steady on Shaky Ground
Phil Myers, (former) caregiver to wife with PSP | Brain Support Network
Eight Things We Learned From This Journey
Jeanette Brown, MD (retired), person with PSP
Being (a) Patient with PSP
PRACTICAL CONFERENCE – PART TWO
Robin Riddle, CEO | Brain Support Network
Moderator of the panel
Sharon J Sha, MD, MS | Stanford
Understanding corticobasal syndrome and progressive Supranuclear palsy: What are tauopathies?
Megan DePuy, MBA, MS, SLP | Private Practice, San Mateo
Speech, Language, and Swallowing treatment for PSP and CBD
Erica Pitsch, DPT, NCS | UCSF
Move it or lose it- strategies to stay mobile and stay safe
Heather E. Moss, MD, PhD | Stanford
Vision symptoms in CBD: what causes them and what can be done?
Handout
Slides (sorry, not available from speaker)